Rectal Prolapse Patient and Public Involvement Day
20 patients and members of the public joined medical professionals for a day of learning, discussion and support in order to aid the work of the BDRF funded research project regarding rectal prolapse.
Rectal prolapse is a distressing condition where the bowel lining prolapses outside the anal canal.
Only surgery can cure the problem and surgeons have invented many operations to do this.
It is common in children, usually before the age of four. It affects girls and boys equally. Adults can also develop rectal prolapse, especially women over 60.
RAPPORT (RectAl ProlaPse OpeRation Trial) is being developed to try and work out the best operation for rectal prolapse.
The research team is being led by Steven Brown, Consultant Surgeon from Sheffield, and includes other surgeons who are experienced in prolapse surgery, as well as a research team from the Sheffield Clinical Trials Unit.
Patient and public involvement (PPI) is really important when designing and running research studies as patients bring valuable contributions and insights by providing judgements based on their own experience and understanding of their condition.
Patients may also have different thoughts and ideas about what is important to patients in terms of measuring outcomes. Often, they will also be able to predict whether a research study is likely to succeed by assessing whether the proposed research will seem acceptable to other patients.
Peter Rowbottom, CEO of the Bowel Disease Research Foundation who attended part of the session yesterday commented;
“Today was a great example of patients and surgeons coming together and really getting to grips with a distressing medical condition. This will enable expert research to be developed in order to improve outcomes for future patients. It’s what BDRF is all about – we are a small organisation that is at the very front line of clinical research and we put patients at the very heart of what we do”
BDRF receives no government funding and relies entirely on charitable donations to ensure it’s vital work into bowel disease and all the complications and distress our bowels can cause us.
If you would like to help this small charity make big advances in clinical practice and improve the quality of life for thousands of people across the UK that suffer with distressing conditions such as rectal prolapse then please make a donation today.