Making life better after bowel surgery – we need your help

For many patients, successful surgery to remove rectal cancer is just the start of a long road to full recovery. A condition known as Low Anterior Resection Syndrome (LARS) can pose a whole new set of challenges after surgery, and cause significant disruption to their lives.

It is increasingly recognised that many people experience LARS but there is no agreement on how this syndrome should be defined. This makes it difficult to find out how many people are affected and is holding back effective care and treatment for those people affected.

Invitation to participate:

A global collaborative of researchers, including the ACPGBI, is seeking patient volunteers who have had surgery to remove a rectal cancer to contribute to an international consensus on the definition of Low Anterior Resection Syndrome. It does not matter if you did or did not have a temporary ileostomy, or if you needed any other treatment for the cancer. It does not matter if you personally have good or poor bowel function. The team simply needs to hear from as many patients as possible.

This study is being run simultaneously in three languages (English, Spanish and Danish). The consensus exercise will run from late March 2018 and consist of three rounds of electronic voting.

There will also be an opportunity for UK-based patients to attend a face-to-face consensus meeting after the voting rounds but this is entirely voluntary, and anyone who just wants to join in the electronic voting is most welcome to contribute to just that part.

To register your interest – please fill out this short survey. Every piece of input is important – so please share as widely as you can among family, friends and anyone else who may be interested.

 

 

 

 

 

 

 

 

 

 

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