Patient Perspectives

Bowel Disease affects millions of people across the UK.

We speak to four patients to learn a little more about them and why they back our work:

Lauraine

“I have an interest in this area owing to my own experience of bowel disease which started 35 years ago.  Without organisations like The Bowel Disease Research Foundation there  would be far less of a chance of finding a cure to these often life long and debilitating conditions.  Plus the BDRF looks at the impact of these diseases from the patients perspective which is most welcome.  It is not always easy to find out exactly what research is going on and if you happen to be a sufferer of one of these conditions,  the fact a cure is being sought, is reassuring to say the least.  That is why I support the BDRF.”

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azmina_web

Azmina

“Having suffered from Crohn’s Disease since childhood, I’ve ended up becoming a seasoned patient representative, advocating for patients with Inflammatory Bowel Disease and Colorectal Cancer, particularly those with stomas.

Having an ileostomy and panproctocolectomy (operation to remove the large bowel) was without doubt the best thing I could have done. If I’d only known how quickly it would give me my life back and take away my pain, I’d have begged a surgeon for the operation much earlier”

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Bob_webBob

“I am an academic in my mid-sixties, teaching and researching at the University of Oxford and before that I held a senior position in the NHS. I have suffered from Crohn’s Disease since I was 16 and have in the intervening years, have had to endure major surgery on several occasions, as well as continuous bad health and a great amount of pain.

I have had an (often troublesome) ileostomy for just under forty years. However, as age creeps up, it is the type 2 diabetes and the arthritis that confronts me every day.”

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Steve_Cook_web

Steve

At 44 years of age my life was turned upside down when I was told I had bowel cancer. I had 2 boys aged 9 and 3 and my wife was 5 months pregnant with our Daughter. Although my bowels had never been happy ( I was diagnosed with irritable bowel when I was 21) I never thought this might happen.

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If you are a patient or someone whose life is affected by Bowel Disease and you would like to participate in future patient collaboration projects then please contact us and we would be happy to discuss further

 

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